Short PH Story

Hey everyone, glad you could stop by and visit. Seems like everyone is telling their story of contracting PH, so I'm gonna take a shot at it and try to write a short version. My little ordeal with PH started back in 2000 when I was admitted to the hospital with Pneumonia. While in the hospital I started throwing blood clots to my lungs and continued getting worse. After a month in intensive care, lung surgery, and a Greenfield filter, I was diagnosed with a disease called Antiphospholipid Anti body Sydrome and Thrombocytopenia. I was treated for this and released from the hospital after 6 weeks on coumadin to control my blood clotting. Over the next few months I continued getting clots in my legs and seemed to be getting worse, becoming extremely short of breath and fatigued, often passing out. I went to several other doctors and all said that there was nothing that could be done that wasn’t already being done. Finally in 2003 I went to a heart specialist who did an echo and said he thought that I had PH and he made an appointment for me with a PH specialist. After being in Doctor Babar's, my PH specialist, office for 15 minutes he was on the phone with PH Specialist at University of California San Diego (UCSD) and they said for the Dr Babar to run some test and send to them. After the tests were done I was told I definitely had PH and that the blood clots had to be removed from my lungs. A few weeks later we were on our way and I had the surgery 3 days after arriving in San Diego by the worlds best surgery team. After the Pulmonary Thrombo Endardirectomy(PTE) surgery I felt like a new person, with the clots removed from my lungs I could breathe much better and walk longer distances, but was still far from being normal. In the end I was still left with PH due to the damage that the clots had already done to my lungs, heart and arteries. I’m still taking PH medications and have tried several new ones as they come out, but I am alive and I will not give up the fight for a cure for PH, maybe not for me but it could help others down the line that get this terrible disease. As I write this in November 2008, I am able to walk better distances, play with my Grandchildren, work outside and just enjoy my family and what God has given me. I have made new friends through the Pulmonary Hypertension Association that are like family, who I can discuss problems with and share feelings. I feel like even though I have a dreadful disease that seems incurable, I am still a blessed person for being able to spend the time that I have on this earth. To others with this disease, I say, don’t ever give up, there is always hope.
Well theres the short version, hope it wasn't too boring, I'm not one to write much about myself. Anyway I guess I need to get outta here and act like I'm doing something before Miss Judi finds me something to do. Yall come when ya can, the doors always open to my friends.

Hugz N Handshakes

TW(Terry)

Memory Makers

Hey everyone, hope this blog day finds ya doing well. Well its official, we had frost this morning....ughh, that means another dreary winter on the way. All the leaves are falling from the trees, the colors of green are gone, and its time to break out the ole longjohns. This time of the year seems depressing, if I stay inside I'm bored and want to go outside. If I go outside I freeze my buttocks off and my lungs burn from breathing the cold air. After the miserable hot summer we had this year I figured that I'd be happy to see winter come. Laffin I guess there's just no way to please me.
I used to get all anxious and excited when cold weather got here mainly because I love to hunt. My sons and I get up early in the morning wayyyyyyyyy before daylight and have a big breakfast and drink coffee and talk about our plans for the hunt that day. This is a time just for us, time we can spend together and laugh and make fun of each other about that missed shot, or the falling in the creek. Judi calls it Man Time, I call it memory makers. This year we'll be welcoming a new member to the Hunting morning Social Club, my oldest Grandson has come of age to deer hunt. I don't know who's more excited, me or him. I thank God for letting me live to see this. I know to many of you this seems unimportant. Wrong.........these are dayz that my Grandson will have as wonderful memories of for the rest of his life. I remember when my Grandfather first took me hunting, I remember the smell of breakfast cooking, of walking out on the back porch and feeling to cold air, and the excitement the night before the hunt, where I couldn't sleep for thinking about that big ole buck I was gonna get and make my Grandfather and Uncles proud of me. Yep, it may seem insignificant to some but to a man its another big step of growing up. Soon it looks like we're going to be in for another big change though, my oldest Granddaughter wants to get that big un too......LOL. This won't be a man thing, but it will be a step to her independence and of course a delight to Papa Terry. So it won't be a man thing for her but I guarantee it will be a memory maker just the same.
Well I guess I better get outta here, I've done bout used up all my paper and ink. Yall come when ya can, the door is always open to my friends.

TW(Terry)