29 April 2008
Well it's a beautiful day outside, Thank you God for another day. I've just been reading the posts at PHA's board and I think about all the other people that go through the same things that I go through daily. I think of the children that have to go through the gruesome and painful test and I hope and pray for a cure, not for myself, but for these poor kids that have to go through this. Kids that possibly will never do the things or see the things that I have already been able to see and do in my lifetime. I think of the parents of these children, the agony and heartbreak they must be enduring, holding on to hope and awaiting a cure. May God Bless every one of you.
I'm still waiting on my PH specialist, Dr Babar, to set up an appoinment with Dr Fagan at the PH center in Mobile, AL. He wants to put me on Sub Q Remodulin and wants to get her opinion if thats the way we should go at this time. I'm really not looking forward to it but nothing else has done any good lately. The Ventavis didn't do anything........zip.......nothing. Tracleer and Viagra is still hanging in there i guess. Getting no better, but not much worse either. Oh well just another day for a PH'er. He suggested heart and lung transplant but I told him I was just gonna use up what i have.
I have an extended family now. It's the fantastic people that I have met through the Pulmonary Hypertension Association website. All the people are great, caring, and wonderful individuals who are going through the same things that i am. They are full of knowledge and very helpful with anything one could want to learn about PH. It's like a load lifted off my chest just to chat with them and read their posts on the bulletin boards. And of course they even explain things in a simple way